- RareStone Group provided the first batch of donations to the foundation.
December 18th, during the 2021 China Conference on Rare Diseases in Beijing, the China Alliance for Rare Diseases (CHARD) and the Chinese Red Cross Foundation (CRCF) jointly initiated the "Rare Disease Mutual Assistance Fund." The "Rare Disease Mutual Aid Fund" is dedicated to improving rare disease awareness, supporting patient assistance, physician training, and rare disease-related research and development projects.
To help more patients with rare diseases and promote the development of Chinese rare disease prevention and treatment, RareStone Group, as the company that provided the first batch of donations to the foundation, participated in the awarding ceremony. Changjiang Guo, CRCF President, issued a donation certificate to Shawn Xiang, Ph.D., CEO of RareStone Group, one of the representatives of the first batch of donating companies.
"In the past years, the Chinese government has done a lot of work to improve the rare disease diagnosis and security. Dedicated to building the first rare disease ecosystem in China, RareStone Group, as part of the social forces, we have no hesitation to improve rare disease prevention and protection. Through the charity mutual aid foundation, we hope to further improve the accessibility of diagnosis and treatment to Chinese rare disease patients. "Said Shawn Xiang, Ph.D., CEO of RareStone Group." We are willing to work together with the China Rare Diseases Alliance, the Chinese Red Cross Foundation, and all walks of life in the society to improve the lives of patients and families impacted by rare diseases."
